1. Cystic Fibrosis Preventive Car
2. Adults with CF Health
3. Primary Healthcare Utilization
4. Screening Rates among Adults with CF
5. CF Population Health Management

A recent study published in the Journal of Cystic Fibrosis has demonstrated that adults with cystic fibrosis (CF) who are covered by private insurance make use of preventive healthcare services at rates comparable to, and in some cases higher than, their counterparts without CF in the general population. This extensive research has been fueled by the increasing life expectancy of the CF population, thanks to advances in modulator therapies and a renewed emphasis on the significance of preventive care for long-term well-being.

The Journal of Cystic Fibrosis, a prestigious periodical affiliated with the European Cystic Fibrosis Society, has provided an informative avenue for specialists and healthcare providers to access vital data and insights into the broader implications of cystic fibrosis care. The published study, available online from January 14, 2024, and bearing the DOI 10.1016/j.jcf.2023.11.013, was meticulously conducted by a team of dedicated researchers led by Sankalp S. Malhotra of The Ohio State University Wexner Medical Center.

In-depth Research Findings

Researchers, including Malhotra, J. Madison Hyer, Djhenne Dalmacy, Don D. Hayes Jr., Dmitry Tumin, Stephen E. Kirkby, Daniel E. Jonas, Seuli Bose-Brill, and Susan S. Li, undertook a rigorous retrospective analysis by examining records from the Truven Health MarketScan database spanning the years 2012-2018. They scrutinized the preventive healthcare service utilization of 25,369 commercially insured adults with CF, contrasting it with data from 488,534 adults without CF, collectively representing a broad swath of the United States population.

The findings indicated that 43% of adults with CF received an annual preventive visit, standing slightly above the 39% observed within the general population. Screening rates for chlamydia were at par for both groups at 28%. In the domain of cervical cancer prevention, 38% of 21-29-year-old females with CF received pap smears every three years, mirroring the 37% rate of their general population peers. At the same time, the rate escalated to 33% for those aged 30-64, slightly over the 31% in the general cohort.

The study shed light on even more significant divergences in areas such as mammograms, where 55% of women with CF received screenings compared to just 44% in the general population. Colonoscopies and dyslipidemia screenings revealed a smaller yet noteworthy advantage for adults with CF, with rates being at 23% and 21% against 21% and 20% for the general population, respectively.

Areas for Improvement

While the overall data paint an optimistic picture, disparities surfaced, especially in the demographic of young adults between the ages of 18 and 27. In this age group, individuals with CF demonstrated a lower rate of annual preventive visits (27%) compared to the general population (42%). Moreover, the research underscores a crucial gap in healthcare delivery and the need to devise strategies to bolster preventive service uptake among young adults with CF.

Implications and Expert Commentary

These discoveries carry profound implications for healthcare professionals and policymakers. Notably, they signify that adults with CF, a population once fraught with dim prognoses, are now availing themselves of the medical vigilance necessary for thriving in the long term. Dr. Susan S. Li, one of the lead authors, emphasized the importance of building upon these findings to ensure that young adults with CF do not fall through the cracks as they transition from pediatric to adult healthcare services.

Cystic Fibrosis and Preventive Healthcare

Cystic fibrosis, a hereditary disorder affecting the lungs and digestive system, has historically posed numerous healthcare challenges. One of the most critical is ensuring that as people with CF age, their care adapts to address the wide spectrum of health issues encountered across a typical lifespan. Preventive services, such as regular screenings and check-ups, play an indispensable role in proactively managing complications of CF and comorbid conditions.

The study emphasizes how preventive care can be an equalizer in healthcare outcomes, with the right measures ensuring that adults with CF receive care on par with the wider community. It is through periodic monitoring and early intervention that the health disparities once rampant among those with CF are being systematically disassembled.

Closing Thoughts

The study by Malhotra et al. marks a significant stride toward understanding and addressing the healthcare needs of adults with CF, while also casting light on the areas requiring intensified focus. As health systems evolve to assimilate these new findings, the promise of improved health outcomes for the CF community looms large on the horizon.


1. Malhotra, S. S., Hyer, J. M., Dalmacy, D., Hayes, D. D., Tumin, D., Kirkby, S. E., Jonas, D. E., Bose-Brill, S., & Li, S. S. (2024). Preventive service utilization among adults with cystic fibrosis covered by private insurance is comparable to the general population. Journal of Cystic Fibrosis.
2. Cystic Fibrosis Foundation. (2023). Cystic Fibrosis Foundation Patient Registry 2023 Annual Data Report. Bethesda, Maryland.
3. Castellani, C., & Duff, A. J. (2019). Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease. Cardiology in the Young, 29(4), 545-550.
4. Sawyer, S. M., & Aroni, R. A. (2005). Self-management in adolescents with chronic illness. What does it mean and how can it be achieved? Medical Journal of Australia, 183(8), 405-409.
5. Quittner, A. L., Goldbeck, L., Abbott, J., Duff, A., Lambrecht, P., Solé, A., Tibosch, M. M., Bergsten Brucefors, A., Yüksel, H., Catastini, P., Blackwell, L., & Barker, D. (2014). Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: Results of The International Depression Epidemiological Study across nine countries. Thorax, 69(12), 1090-1097.

Health Expert Contact Info
For more insights surrounding this study and its broader implications for healthcare delivery and patient management, experts are available by request. Interested parties may contact Dr. Susan S. Li at for detailed information and commentary.